Publications

Published or accepted Peer-Reviewed Journal Articles or conference preceedings

*Authored with student(s)

Advance Care Planning and Decision-Making with Persons with Dementia and Family Caregivers

  1. Schlag, K.*, Britt, K.*, Kwak., J., Burrows, D. *, & Fry, L. (2022). Decision support needs of dementia caregivers. American Journal of Hospice and Palliative Medicine, 39 (7), 812-821. doi:10.1177/10499091211056035

  2. Geshell, L.,* Kwak, J., & Radhakrishnan, K. (2019). Perspectives and Experiences of Persons

    With Dementia With Advance Care Planning: An Integrative Literature Review. Journal of Geriatric Psychiatry and Neurology, 32(5), 231-245. doi:10.1177/0891988719853040.

  3. Kwak, J., Xie, B., Champion, J. D., & Fleischmann, K. R. (2019). Rural Dementia Caregivers in Southwest Texas: An Exploratory Study of Advance Directives and End-of-Life Proxy Decision Making. Journal of Gerontological Nursing, 45(9), 11-17. doi:10.3928/00989134-20190530-01.
  4. Xie, B., Champion, J. D., Kwak, J., & Fleischmann, K. R. (2018). Mobile Health, Information Preferences, and Surrogate Decision-Making Preferences of Family Caregivers of People With Dementia in Rural Hispanic Communities: Cross-Sectional Questionnaire Study. Journal of Medical Internet Research, 20(12), e11682. doi:10.2196/11682
  5. Kwak, J., & Noh, H. (2018). What Matters to Persons with Dementia at the End of Life: Perspectives of Proxy Decision-Makers. Journal of Hospice and Palliative Nursing (20), 5, 478-485. doi: 10.1097/NJH.0000000000000465.

  6.  

    Xie, B., Berkley, A., Kwak, J., Fleischmann, K., Champion, J. D., & Koltai, K.*(2018). End-of- life decision making by family caregivers of persons with advanced dementia: a systematic review. Sage Open Medicine, 6: 1-9. URL: http://journals.sagepub.com/doi/full/10.1177/2050312118777517

  7. Noh, H. & Kwak, J. (2018). End-of-life decision making for persons with dementia: Proxies’ perception of support. Dementia, 17(4), 478-493. doi: 10.1177/1471301216648473.

  8. Geshell, L., Kwak, J., and Radhakrishnan, K. (ACCEPTED).* Perspective and Experiences of Persons with Dementia with Advance Care Planning: Literature Review. Journal of Geriatric Psychiatry and Neurology.

  9. Kwak, J., Xie, B., Champion, J., & Fleischmann (ACCEPTED). An Exploratory Study with Rural Dementia Caregivers in Southwest Texas: Advance Directives and End-of-Life Proxy Decision-Making. Journal of Gerontological Nursing. 

  10. Xie B, Champion JD, Kwak J, Fleischmann KR (ACCEPTED). Mobile Health, Information Preferences, and Surrogate Decision-Making Preferences of Family Caregivers of Persons with Dementia in Rural Hispanic Communities: A Pilot Study. Journal of Medical Internet Research.

  11. Kwak, J., & Noh, H.  (2018). What Matters to Persons with Dementia at the End of Life: Perspectives of Proxy Decision-Makers.  Journal of Hospice and Palliative Nursing (20), 5, 478-485. doi: 10.1097/NJH.0000000000000465

  12. Xie, B., Berkley, A., Kwak, J., Fleischmann, K., Champion, J. D., & Koltai, K. (2018). * End-of-life decision making by family caregivers of persons with advanced dementia: a systematic review. Sage Open Medicine, 6: 1-9. URL: http://journals.sagepub.com/doi/full/10.1177/2050312118777517

  13. Noh, H. & Kwak, J. (2018). End-of-life decision making for persons with dementia: Proxies’ perception of support. Dementia, 17(4), 478-493. doi: 10.1177/1471301216648473.

  14. Fleischmann, K. R., Xie, B., Champion, J. D., Kwak, J., & Koltai, K. S. (2018). * Human values and end-of-life decision making: Results from a pilot study of dementia caregivers. Forthcoming in Proceedings of the 81st Annual Meeting of the Association for Information Science and Technology, Vancouver, Canada (poster, 2 pages).

  15. Kwak, J., Larwelle, J.A., O’Connell Valuch, K., & Kesler, T. (2016). * Role of advance care planning in proxy decision-making among persons with dementia and their family caregivers. Research in Gerontological Nursing, 9, 72-80.

  16. Kwak, J., Wallendal, M., Fritsch, T, Leo, G. & Hyde, T. (2014). * End-of-life decision making preferences among surrogates of persons with Parkinson disease. Southern Medical Journal, 107(3), 17-185.

Advance Care Planning and End of Life Decision-Making with Diverse Cultural Groups

1. Kwak, J., & Ellis, J. (ACCEPTED). Factors related to advance care planning among older African American women: Age, medication, and acute care visits. Palliative and Supportive Care

2. Kwak, J., Cho, Y., Lee, Y., Noh, H., & Roh, S. (ACCEPTED). Differences in Advance Care Planning between American Indian and White Older Adults. Research in Gerontological Nursing.

3. Gao, X., Sun, F., Ko, E., Kwak, J. & Shen, H.W. (2015). * Perceptions and knowledge of end-of-life care in Chinese American elders: The role of acculturation. Palliative & Supportive Care, 13, 1677-1684.

4. Ko, E., Kwak, J., & Nelson-Becker, H. (2015). What constitutes a good and bad death?: Perspectives of homeless older adults. Death Studies, 39(7), 422-432.

5. Kwak, J., Ko, E.J. & Kramer, B.J. (2014). Advance care planning practice with elders of diverse ethnic backgrounds and needs. Health & Social Care in the Community, 22, 169-177.

6. Jang, Y., Chiriboga, D.A., Allen, J., Kwak, J., Salmon, J., & Haley, W.E. (2010). Willingness to use hospice among Korean American older adults. Journal of the American Geriatrics Society, 58, 352-356.

7. Kwak, J., Haley, W. E., & Chiriboga, D. A. (2008). Racial differences in hospice use and in-hospital death among Medicare and Medicaid dual-eligible nursing home residents. The Gerontologist, 48, 32-41.

8. Kwak, J., & Salmon, J. R. (2007). Attitudes and preferences of Korean American elders and caregivers on end-of-life care. Journal of the American Geriatrics Society, 55, 1867-1872.

9. Kwak, J., & Haley, W. E. (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. The Gerontologist, 45, 634-641.

10. Kwak, J., Salmon, J. R., Acquaviva, K., Brandt, K., & Egan, K. (2007). Benefits of training family caregivers on experiences of closure during end-of-life care. Journal of Pain and Symptom Management, 33, 434-445.

11. Salmon, J. R., Kwak, J., Acquaviva, K., Brandt, K., & Egan, K. (2005). Transformative aspects of caregiving at life’s end. Journal of Pain and Symptom Management, 22, 188-194.

12. Salmon, J. R., Kwak, J., Acquaviva, K., Brandt, K., & Egan, K. (2005). Validation of the Caregiving at Life’s End Questionnaire. American Journal of Hospice and Palliative Medicine, 29, 121-191.

13. Allen, S. R., Kwak, J., Lokken, K. L., & Haley, W. E. (2003). End of life issues in the context of Alzheimer’s disease. Alzheimer’s Care Quarterly, 4, 312-330.

pERSON-CENTERED CARE FOR PERSONS WITH DEMENTIA

1. Kwak, J., Anderson, K., & Oconnell-Valuch, K. (Published online June 1, 2018). Findings from a prospective randomized controlled trial of Music & Memory, an individualized music listening program for persons with dementia.  Journal of Applied Gerontology. DOI: 10.1177/0733464818778991. URL: http://journals.sagepub.com/doi/abs/10.1177/0733464818778991

2. Maschi, T., Kwak, J., Ko, E. J., & Ko, E., & Morrissey, M.B. (2012). Forget me not: Dementia in prison. The Gerontologist, 52, 441-451.

3. Fritsch, T., Kwak, J., Montgomery, R. J. V., Lang, J., & Basting, A.D. (2009). * Impact of TimeSlips, a creative expression intervention, on nursing home staff and residents with dementia. The Gerontologist, 49, 117-127.

4. Kwak, J., Smith, K.M.,* Bern-Klug, M., & Kalin, K. (2021). Dementia care involvement and training needs of Social Services directors in U.S. nursing homes. Journal of Gerontological Social Work, 65(7), 851-862.

5. Kwak, J., Ha, J.-H., & O’Connell Valuch, K. (2021). Lessons learned from the statewide implementation of the Music & Memory program in nursing homes in Wisconsin in the USA. Dementia, 20(5), 1617-1630. doi:10.1177/1471301220962234

6. Kwak, J., Anderson, K., & Oconnell-Valuch, K. (2020). Findings from a prospective randomized controlled trial of Music & Memory, an individualized music listening program for persons with dementia. Journal of Applied Gerontology, 39(6), 567-575. DOI: 10.1177/0733464818778991. URL: http://journals.sagepub.com/doi/abs/10.1177/0733464818778991

Caregiver Support Interventions

26. Kwak, J., Montgomery, R.J.V., Kosloski, K., & Lang, J. (2011). * The impact of TCARE® on service recommendation, use, and caregiver well-being. The Gerontologist, 51, 704-713. 

27. Montgomery, R.J.V., Kwak, J., Kosloski, K., & O’Connell Valuch, K. (2011). Effects of the TCARE® intervention on caregiver burden and depressive symptoms: Preliminary findings from a randomized, controlled study. The Journal of Gerontology, Series B: Psychological Sciences and Social Sciences, 66, 640-647.

28. Montgomery, R.J.V., Kwak, J., Rowe, J.M. (2011). * Advancing social work practice with family caregivers. Indian Journal of Gerontology. 25, 553-575.

29. Montgomery, R. J.V., & Kwak, J. (2008). Tailored Caregiver Assessment and Referral (TCARE) process: An evidence-based model for effectively supporting caregivers. American Journal of Nursing 108(9), Supplement, 54-57.

 

 

Diversity, Interprofessional Collaboration, and Palliative Care

1. Kwak, J., Rajagopal, S.,* Handzo, G., & Hughes, B. (2022). The Impact of COVID-19 on Spiritual Care Delivery Across Healthcare Settings. Palliative Medicine, 36(1), 105-113. doi:10.1177/02692163211043373

 

2. Kwak, J., Jamal, A*, Jones, B., Timmerman, G., Hughes, B., and Fry, L. (2022). Interprofessional approach to Advance Care Planning. American Journal of Hospice and Palliative Medicine, 39(3), 321-331. doi:10.1177/10499091211019316

 

3. Kwak, J., Cho, S., Hughes, B., Handzo, G., Hasan, SS.,* and Luu, A.* (2021). The role and activities of board-certified chaplains in advance care planning. American Journal of Hospice and Palliative Medicine, 38(12):1495-1502. doi:10.1177/1049909121989996.

 

4. Kwak, J., & Ellis, J. (2020). Factors related to advance care planning among older African American women: Age, medication, and acute care visits. Palliative and Supportive Care, 18(4), 413-418. doi:10.1017/S1478951519001007

5. Kwak, J., Cho, Y. I., Lee, Y. S., Noh, H., & Roh, S. (2019). Differences in Advance Care Planning Between American Indian and White Older Adults. Research in Gerontological Nursing, 12(1), 34-43. doi:10.3928/19404921-20181212-02.

Health and long-term Care policy

30. Kwak, J. & Polivka, L. (2014). The future of long-term care and the aging network. Generations, 38 (2), 67-73.

31. Kwak, J., Kramer, B., Lang, J., & Ledger, M. (2013). * Care management for frail elders at the end of life: A case study of Wisconsin Family Care program. Research on Aging, 35, 393-419.

32. Polivka, L., & Kwak, J. (2008). Medicare privatization and the erosion of retirement security. Journal of Aging and Social Policy, 20, 340-352.

Book Chapters

  1. Burton, A.M., Kwak, J. & Haley, W. E. (In press). Elder caregiving. In C. Spielberger (Ed.) Encyclopedia of applied psychology (2nd ed., Vol. 1, pp 703-711). Oxford: Elsevier

  2. Burton-Chase, A.M., Kwak, J., Hennig, K., Haley, W.E. Elder Caregiving. In Reference Module in Neuroscience and Biobehavioral Psychology, Elsevier, 2017. ISBN 9780128093245.

  3. Montgomery, R.J.V., & Kwak, J. (2016). Theories Guiding Support Services for Family Caregivers. In Bengtson, V.C. & Settersten, R.A. (Eds), Handbook of Theories of Aging. New York: Springer.

  4. Kwak, J. & Collet, E.P. (2013). Diversity at the end of life. In Werth, J. L. (Ed.), Counseling clients near the end of life: Practical perspectives on fundamental issues. New York: Springer.

  5. Kwak, J., Allen, J. Y., & Haley, W. E. (2011). Advance care planning and end-of-life decision making. In P. Dilworth-Anderson & M. H. Palmer (Eds.), Annual review of gerontology and geriatrics: Pathways through the transitions of care for older adults (Vol. 31, pp. 143-165). New York: Springer.

  6. Haley, W.E. & Kwak, J. (2010). Gerontology. In Weiner, I.B. & Craighead, W.E. (Eds). The concise Corsini encyclopedia of psychology and behavioral science (4th ed., Vol. 2, pp.399-401). Hoboken, New Jersey: John Wiley & Sons, Inc.

  7. Branch, L.G., Evashwick, C. J., & Kwak, J. (2005). Clients of the continuum. In Evashwick, C. J. (Ed.), Continuum of long-term care (3rd ed., pp.15-28). California: Delmar Thomson Learning.

Technical Reports

  1. Kwak, J., & O’Connell Valuch, K. (2016). Music and Memory Program Evaluation: White Paper. 

  2. Kwak, J., Brondino, M., O’Connell Valuch, K., & Feay-Shaw, S. J. (2016). Evaluation of the Music and Memory Program among Nursing Home Residents with Dementia: Interim Report to the Wisconsin Department of Health Services. 

  3. Kwak, J., O’Connell Valuch, K., & Maeda, H. (2016). Evaluation of Individualized Music Listening for Dementia Nursing Home Residents Using Accelerometers and MDS Dataset (Project Number 15765): Final Report to Bader Philanthropies. 

  4. Kwak, J., Brondino, M., O’Connell Valuch, K., & Feay-Shaw, S. J. (2015). Evaluation of the Music and Memory Program among Nursing Home Residents with Dementia: Quarterly Report to the Wisconsin Department of Health Services. 

  5. Kwak, J. (2013). Cost-Effectiveness of Home- and Community-Based Programs in the U.S.: Review of the Current Literature. Report prepared for the Claude Pepper Center, Florida State University.

  6. Montgomery, R.J.V., Kwak, J., Rowe, J.M., Jacobs, J., Lang, J., O’Connell Valuch, K., & Wallendal, M. (2010). Improving Options for Persons with Alzheimer’s Disease and Their Caregivers in the State of Georgia: Tailored Caregiver Assessment and Referral® Project Final Report. Prepared for the Georgia Division of Aging Services.

  7. Kwak, J., & Kramer, B. (2009). End-of-life Care Coordination in the Wisconsin Family Care Program in Milwaukee County: A Case Study. Prepared for the Milwaukee County Department on Aging Care Management Organization.

  8. Montgomery, R.J.V., Rowe, J.M., & Kwak, J. (2008). Tailored Caregiver Assessment and Referral TCARESM Project Progress Report. Prepared for the Georgia Division of Aging Services.

  9. Chiriboga, D.A., Cho, S., Jang, Y., Phillips, K., Kwak, J. et al (2007). Racial and Ethnic Behavioral Health Disparities: Cultural Competence in Nursing Homes. Tampa, FL: Louis de la Parte Florida Mental Health Institute. University of South Florida.

  10. Chiriboga, D.A., Kwak, J., et al. (2006). Disparities in the Pre and Post Admission Characteristics of Medicaid Beneficiaries Admitted to Nursing Facilities. Tampa, FL: Louis de la Parte Florida Mental Health Institute. University of South Florida.

  11. Mitchell, G. E., Kwak, J., Chiriboga, D. A., & Haley, W. E. (June, 2006). Cost Savings Associated with End-of-Life Care: Comprehensive Analyses of End-of-Life Services Utilization and Outcomes among Florida Medicaid Beneficiaries. Prepared for Florida Agency for Health Care Administration.

  12. Mitchell, G. E., Kwak, J., & Li, Y. (June, 2005). Hospice length of stay among Florida Medicaid consumers. Prepared for Florida Agency for Health Care Administration.

  13. Mitchell, G. E., Li, Y., & Kwak, J. (June, 2005). Acute care and long-term care utilization reporting by contractors for the Integrated Long-Term Care Nursing Home Diversion program: January – December 2004 utilization experience. Prepared for Florida Agency for Health Care Administration.

  14. Mitchell, G. E., Li, Y., & Kwak, J. (March, 2005). Acute care and long-term care utilization reporting by contractors for the Integrated Long-Term Care Nursing Home Diversion program: April – December 2003 utilization experience. Prepared for Florida Agency for Health Care Administration.

 

 

CONFERENCE PROCEEDINGS

 
 
 
 
 
 
 
 
 
 
 
 
 
 

  1. Kwak, J., Smith, K., & Bern-Klug, M. (2021). Dementia Care Involvement and Training Needs of Social Services Directors in U.S. Nursing Homes, Innovation in Aging, 5(Supplement_1),116-116.

  2. Britt, K., Acton, G., Kwak, J. (2021). Religion and Spirituality Measures in Dementia: An Integrative Review of the Literature, Innovation in Aging, 5(Supplement_1),749-749.

  3. Kwak, J., Moon, H., & Roh, S. (2020). The role of health, social network, and race in advance care planning among Medicare beneficiaries. Innovation in Aging, 4(Supplement_1), 69-70.doi:10.1093/geroni/igaa057.227

  4. Geshell, L., & Kwak, J. (2020). Perspectives of persons with dementia, family, and healthcare providers on an advance care planning decision aid. Innovation in Aging, Volume 4, Issue Supplement_1, 2020, Page 787, https://doi.org/10.1093/geroni/igaa057.2849

  5. Kwak, J., Ha, J., & Britt, K. (2020). Statewide implementation of the Music & and Memory program: Facilitators, barriers, and lessons learned. Innovation in Aging, Volume 4, Issue Supplement_1, 2020, Pages 59–60, https://doi.org/10.1093/geroni/igaa057.194

  6. Kwak, J., & Geshell, L. (2019). End of life decision support needs of dementia caregivers. Innovation in Aging, 3(Supplement_1), S593-S593. doi:10.1093/geroni/igz038.2203

  7. Schlag, K. E., Kmetz, L., Burrows, D., & Kwak, J. (2019). Value and information needs for dementia family caregivers: Considerations during end of life decision making. Innovation in Aging, 3(Supplement_1), S963-S964. doi:10.1093/geroni/igz038.3494

  8. Fleischmann, K. R., Xie, B., Champion, J. D., Kwak, J., & Koltai, K. S. (2018). * Human values and end-of-life decision making: Results from a pilot study of dementia caregivers. Proceedings of the 81st Annual Meeting of the Association for Information Science and Technology, Vancouver, Canada (poster, 2 pages).

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

PRESENTATIONS AT A NATIONAL CONFERENCE/ORGANIZATION MEETING

  1. Kwak, J., Smith, K., & Bern-Klug, M. (Accepted). Dementia Care Involvement and Training Needs of Social Services Directors in U.S. Nursing Homes (2021,November), The Gerontological Society of America Annual Scientific Meeting, Phoenix, Arizona (Referred, Academic, Symposium presentation).

  2. Britt, K., Acton, G., Kwak, J. (Accepted). Religion and Spirituality Measures in Dementia: An Integrative Review of the Literature (2021, November), The Gerontological Society of America Annual Scientific Meeting, Phoenix, Arizona (Referred, Academic, Poster presentation)

  3. Rajagopal, S.,* Kwak, J., Handzo, G., & Hughes, B. The Impact of COVID-19 on Spiritual Care Delivery Across Healthcare Settings (2021, February). The St. David’s CHPR 19 Annual Conference, Virtual (Referred; Academic; Poster presentation).

  4. Jamal, A.,* Dronamraju, N.,* Esmali, C.,* Rajagopal, S.* & Kwak, J. Meeting the spiritual concerns of patients during advance care planning in the COVID-19 era. The St. David’s CHPR 19 the Annual Conference, Virtual (Referred; Academic; Poster presentation).

  5. Schlag, K.E., & Kwak J. (2020 June) Dementia family caregiver coping patterns for managing decisional conflict and stress during end-of-life care planning. Poster presented at the ACH Healthcare Communication Virtual Research Forum.

  6. Schlag, K.E., Kmetz, L., Burrows, D.R., & Kwak, J. (2019, Dec.) Value considerations and information needs for dementia family caregivers during end-of-life decision making. Paper presented at the Aging and Health Informatics Conference at The University of Texas at Austin, TX.

  7. Kwak, J. Xie, B., Fleischmann, K.R., & Champion, J.D. (2018). Advance care planning and proxy decision-making preferences among persons with dementia and caregivers. The CSU Institute for Palliative Care, National Symposium for Academic Palliative Care Education and Research, San Diego, CA (Referred; Academic & Practitioner; Poster presentation).

 
 
 

Other

1. Kwak, J. & Haley, W.E. (Accepted). Differing Views of End-of-Life Care Among Major US Ethnic Groups. Postgraduate Institute for Medicine (PIM). Web lesson online.